Our Stories

This sweet little boy is Jorge. Jorge has Trisomy 18, also known as Edwards syndrome. There is no treatment or cure for children with Edwards Syndrome, and they usually have very short lives. [...]

Cassandra was diagnosed with Trisomy 18 when she was born just three months ago. Due to needing constant care and monitoring at home, her mother has taken an extended leave from work. Your [...]

Zachary’s mom, Linda, has fought tirelessly for her son’s life ever since he was diagnosed with hypoplastic left heart syndrome; a heart defect that affects normal blood flow through [...]

Staij has multiple life-limiting illnesses. Her mother is a nurse who works with seriously ill children in the hospital. Right before her 10th birthday, Staij developed severe complications from [...]

Nate’s family can’t thank you enough for your help When we first met little Nate he had just been diagnosed with a genetic mutation that caused him to have uncontrollable seizures. [...]

As other families were getting ready for the holidays, Katie’s family was thrown into disarray when Katie, who has cystic fibrosis, caught two viruses. She was immediately hospitalized and [...]